Why Ryan Wears a Helmet
My son was diagnosed with
plagiocephaly (or flattened-head syndrome) when he was 6
months old. Here's what every parent needs to know—and
what I wish someone had told me—about this common
condition.
By
Nancy DePalma
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It's On the Rise
Doctors are seeing more and more cases of positional
plagiocephaly. Today, it affects one in 60 babies, compared with
one in 300 in 1974. Parents notice that their baby has an oddly
shaped head with a flat spot on the back or one side and that
their child's facial features or ears are asymmetrical. "While
plagiocephaly is not life-threatening and doesn't affect brain
development, it can lead to improper skull growth and
permanently affect the symmetry of a child's face if it isn't
treated properly," explains John Persing, M.D., a craniofacial
surgeon at Yale–New Haven Hospital, in Connecticut.
Some infants are born with plagiocephaly because of cramped
quarters or positioning in the uterus, while others develop it
owing to torticollis, a tightening on one side of the neck
muscles that causes a baby to favor looking in one direction
over the other. Experts believe that the recent jump in cases,
however, is the result of the "Back to Sleep" campaign
introduced in the 1990s to reduce the risk of sudden infant
death syndrome. While this program—which encourages parents to
put their babies to sleep on their back rather than their
stomach—has been widely credited with cutting the number of SIDS
deaths by 40 percent, it's also led to an unfortunate side
effect: plagiocephaly. Since an infant's skull is soft, it can
easily be molded by external pressure from a firm mattress.
Some Babies Are At Higher Risk
Misshapen heads are most common in premature babies, since they
tend to have softer skulls than full-term infants. (Ryan was
born a month early.) Multiples are also more likely to be born
with slightly deformed skulls because they are often cramped in
the womb.
Parents Can Help Prevent Plagiocephaly
"First of all, you should always put your infant on his back to
sleep—don't put him on his stomach because you're worried about
a flat spot," says Dr. Persing. "The key is to alternate the
position of his head each night." In other words, turn it to the
left side one night, the right side the next. Be sure to do this
at naptimes as well. In addition, give your baby plenty of tummy
time during the day, starting when he's 2 or 3 weeks old. Simply
place him belly-down on your chest or across your lap for a few
minutes several times a day to get him used to the position. At
three months, put your baby on a thin blanket on the floor for
several five- to ten-minute sessions while you watch. (Tucking a
small, rolled receiving blanket under his chest may make him
more comfortable and better able to look around.) Finally, try
to minimize the amount of time your baby spends in car seats,
bouncy seats, or infant swings during his first 6 months—or use
a soft headrest to adjust the position of his head so that the
same part of his skull isn't pressed against the seat day after
day.
Diagnosing Problems Early Is Vital
Many babies have slight skull imperfections as a result of
traveling through the birth canal, and most of these problems
will correct themselves within the first 6 weeks of life. But if
your baby's head doesn't improve—or if the flattening seems
noticeably worse—talk to your doctor about getting a referral to
a pediatric neurosurgeon or craniofacial surgeon. Sometimes,
using mobiles and toys to coax a baby to turn his head will do
the trick. In more severe cases, the only option is a cranial
band. The band, which has a hard plastic exterior and foam
interior, guides the head's growth and allows the flat part of
the skull to expand and round out. The earlier plagiocephaly is
treated, the better, since head growth slows as a child ages,
which makes correcting the shape more difficult.
The Band's Not as Bad as It Looks
I'll admit that sometimes it's difficult to deal with children's
stares or people asking whether Ryan had brain surgery. But
other than that, the cranial band has been easier to deal with
than I expected. Ryan wears the band for 23 hours a day (it
comes off only for bathtime); it has to be refitted—which is
done by shaving a part of the foam interior to allow room for
growth—almost every other week. (The band and fittings cost
around $3,000; most or all of this is usually covered by
insurance.)
At first, we were concerned that Ryan would constantly try to
take off the band. But he managed to adjust to it within a day
and usually doesn't even seem to notice he's wearing it. While
most babies use a cranial band for an average of four months,
Ryan—who is now 11 months old—will probably wear his for at
least six. However long it takes, we don't care—we've already
noticed a huge improvement in Ryan's head. In fact, the flat
spot is almost gone!
Learn More on the Web
Does your baby have a suspicious flat spot—or do you want to
learn more about tummy time? Log on to these sites:
www.plagiocephaly.org
www.cappskids.org
www.cranialtech.com
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